I have always assumed that in the ideal world there would always be time for all the things that are important to us, time for the people who are important to us yes, but also time to explore and learn and do all the things we think matter.
But of course we do not live in an ideal world, and I suspect that even the concept of ideal is highly subjective and even illusory, just as the imaginary "ideal mate" is only a shallow half truth, a list of the things we think we want which is never fully realized because we as humans tend to discount the importance of the mundane, the necessary, and especially the things we dislike. We tend to not think about how the characteristics of those we love are deeply intertwined in their psyches with other characteristics, perhaps even qualities that we find less than attractive. In the same way that our view of those we love is defined by our views of ourselves, so is our view of the "ideal" world. Our relationship to the "ideal" directly reflects our relationship to ourselves and our own self-judgement. The truth is there is no ideal, only me, how I chose to function in the world and what I chose to accept or not accept. This is something I struggle with every day, some days more successfully than others. The same is true for all of us to some degree or another, whether we chose to be aware of the struggle or not.
But where am I going with all this philosophizing? Is it really fair to disappear for two weeks and then reappear, spouting mumbo jumbo? To tell the truth, I am not quite sure, but I am willing to trust all the hypothetical posts that have been swirling around in my head during the past weeks are not completely lost, but have found some toehold in my mind and that something coherent will arise from the depths. In the end, this too may prove to be just another illusion.
Let's go back to that concept of "ideal". Nearly two weeks ago I was in Chicago. The trip was good for me, and although it had its ups and downs, it was clearly exactly what I needed. I would have preferred not to come home to the chaos that greeted me upon my return, and I would have said that in the ideal world what is good for me would also be good for G. The truth is that what is good for G probably is good for me and vise versa. But to make that work, I have to stop wishing for the ideal and start living with the actuality.
The simple story is that things fell to pieces on the home front while I was away. The scheduled night aide disappeared and the agency had to scramble to fill the slots. Yes we had help, but having someone new every night was not good for G, whose mind can no longer really comprehend or cope with the unexpected. Sunday night I returned to my hotel room to a flurry of texts that once again there was no aide, and I was on the phone, calling everyone, the angry hen defending her brood, even when that brood is one dementia-addled spouse. Perhaps I overreacted. It is true that I did not have all the information, and that I regretted some things when I returned home and learned more. But I also learned that I made the right decisions, that things could have been much worse.
But as I pondered the whole situation and went through the various stages of coming to terms with the state of my life I realized several things. It was not about me feeling guilty for going away. It was not about me at all. I had to accept that there are two forces at work here. Me, meaning what I think I want, what I think I don't want, my own self-judgements about these things, and what actually is happening around me to the person I love. I knew that we needed more help. That five full days and two half days a week with no night-time help was not good enough. But I was not ready to accept that G really needed 24 hour care. I thought there could be some transitionary period where I could prepare G for the eventual shift. But it wasn't really G who needed to be prepared; I was the one who needed to accept the inevitability of change and decline. I needed to see G with both my eyes and my heart, not looking for some ideal, but accepting what is and making the most of it.
It is not always easy.
The last two weeks have been a period of transition and changes. G was confused and tired. I was a trifle overextended. Nonetheless there were good moments. We went to the zoo. Grandpa held on to Owen's hat while we took a short break for ice cream and popsicles. Moments of silliness still exist.
On Monday we start 24 hour care. I expect the first week to be difficult, but it may not be as difficult as I imagine. G may in fact be more ready for this transition than I. Nonetheless I am planning for a light week, with no particular plans and a pile of frivolous, easily interruptable reading. I am giving myself permission to try not to define myself by what I do, but to just go with the flow and try to be present when needed. This may be the hardest task I've set for myself yet.
It may be a week of radio silence. It may not.




